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Post by ohwell on Nov 21, 2009 20:52:00 GMT -5
Things are very unsettled. I guess that is a polite way of explaining. The virus that has infected his chest area is related to HIV. It is attacking cell type 7.  It is a result of the chemo. The pneumonia is CPC or PCP. He was taken off of the IV because of fluid retention. He is now receiving transfusions. Oh, they are also taking him off of antibiotics. ? I know, you can't kill a viral infection with antibiotics. I know, I know. But something has to get better and continue to get better. So far, anytime there is good news, the bad news is worse. His tongue is so swollen and dry, that he can't speak. He will turn his head, his lips will move to the tune of I Love You. I will not kiss those lips. They will start bleeding again. When his lips start to bleed, the blood will drip down his chin and neck. The fever blisters are vicious. I feel like the movie "Beetlejuice" I love that man of mine. I just pray I will have him for several more years. |
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Bob
Global Moderator
Bird Geek
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Post by Bob on Nov 21, 2009 23:08:34 GMT -5
can I (or Karen and I) help ? you know we will. If visiting and proving he has a friend he never met will help, let me/us know.
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Post by Warkitty on Nov 22, 2009 9:26:43 GMT -5
My heart is crying out for you and him.
Please, if there's something any of us can do. Come visit, take the furry children out for a bathroom break, anything....
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Post by rstewart on Nov 22, 2009 9:43:50 GMT -5
Marinol is a legal substance. It's synthetic THC.
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Post by ohwell on Nov 22, 2009 17:19:59 GMT -5
Thanks to all of you. I appreciate your kindness. I have things under control. Sometimes I like to sit in a corner and cry. I have been assured that his health will get better.
Again, thanks - very much.
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Post by Warkitty on Nov 22, 2009 19:36:32 GMT -5
You cry any time you need to. I will take the assurance that he'll get better to heart and add my own belief that he'll get better.
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Post by ohwell on Nov 22, 2009 19:40:30 GMT -5
I won't call you girl, I won't call you lady, I will call you a caring friend. Thank you for giving me hope.
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ScarlettP
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Cookie Fairy
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Post by ScarlettP on Nov 23, 2009 7:06:20 GMT -5
I'm so sorry to hear that he appears to be getting worse. Maybe you could think of it like a good house cleaning. You gotta pull all the junk out in the middle of the floor to get the stubborn dirt out of the corners, then put everything back away nice and clean an neat. Right now, all that chemo is tossing junk out in the street. It looks bad at the moment, but when you start putting things back together and where they belong, it will be so nice. And you both will feel the satisfaction of a job well done.
And don't forget that foreheads, cheeks and hands are good for kissing, also. Be strong girlfriend. You can do it. Just let it out when you need to, then suck it up, put on a good face and go back in there to show him that you love him, need him and want him to be better.
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Post by ohwell on Nov 23, 2009 13:22:13 GMT -5
Paleeze, don't mention house cleaning. I expect the health department to burn the place down. It is amazing just how long that bowl of chili can sit in the frig. It is amazing just how many pairs of undies I have. It is amazing how long potatoes keep.
Uhm, wonder where the little gnats are coming from? Maybe I'd better check those potatoes.
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ScarlettP
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Cookie Fairy
Posts: 4,856
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Post by ScarlettP on Nov 24, 2009 8:23:37 GMT -5
Housework has been much on my mind lately. I do "Spring cleaning" at an odd time... After Halloween and before Christmas.
Yesterday, my niece helped me clean out the 'garage' behind the shop. What a frelling mess! There was lumber under one of the racks that had gotten wet and then laid there so long that it was rotted or bug eaten to the point of not only looking like corrugated cardboard with part of the top layer pealed off, it was as light as paper! An actual cardboard box had decayed in such a manner as to make it feel like some sort of oiled cloth more than paper. Very strange. Rather scary. We removed it all with a hoe and a broom, scooping every thing up and into a trash bag while trying not to look to closely.
I can't remember my garage floor looking so good! It's all swept clean and there is nothing left touching the concrete that might get icky-fied should water get in there again.
We made some good progress on the attic as well. Now we just have to finish that and do the upstairs section of the garage....and then....
Any tough job that needs to be done is better when you have friends along to help. That's what we're here for sweetie. To help you get through all this mess. Once it's all cleaned up, you'll feel SO much better. Hugs!
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Jay
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Captain Cupcake
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Post by Jay on Nov 24, 2009 11:50:13 GMT -5
Housework has been much on my mind lately. I do "Spring cleaning" at an odd time... After Halloween and before Christmas. Sounds more like Winter Cleaning!  |
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Post by gridbug on Nov 24, 2009 12:40:59 GMT -5
Sounds right to me. That's when I do it too.
Try "fall". Winter starts four days before Christmas, and those four days are no good for cleaning.
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Jay
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Captain Cupcake
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Post by Jay on Nov 24, 2009 13:54:20 GMT -5
You're right. Sounds more like "Fall Cleaning!" |
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Post by ohwell on Nov 24, 2009 20:25:32 GMT -5
He is home. Doesn't have the strength to stand up and walk, he has a walker. He is on O2. But, he is eating better.
There are two types of HIV, positive and negative. One causes fever blisters and the other AIDS. The one that causes fever blisters mutated, because of the chemo, and attacked his lungs causing the pneumonia.
Hopefully, he is on the mend for that. The other problem, he is suppose to have chemo every three weeks. His last chemo was six weeks ago. According the doctor's, it may be another six weeks before the infection is gone and he can resume chemo. I won't know until Monday what this may mean for his cancer.
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msp
Full Member
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Post by msp on Nov 24, 2009 20:42:53 GMT -5
fall cleaning for me too! I hate to clean house on a beautiful day though, so rainy day cleaning is the best.
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Post by Warkitty on Nov 24, 2009 22:20:52 GMT -5
I'm glad he's home and eating better!
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Post by emanon on Nov 24, 2009 23:05:11 GMT -5
He is home. Doesn't have the strength to stand up and walk, he has a walker. He is on O2. But, he is eating better. There are two types of HIV, positive and negative. One causes fever blisters and the other AIDS. The one that causes fever blisters mutated, because of the chemo, and attacked his lungs causing the pneumonia. Hopefully, he is on the mend for that. The other problem, he is suppose to have chemo every three weeks. His last chemo was six weeks ago. According the doctor's, it may be another six weeks before the infection is gone and he can resume chemo. I won't know until Monday what this may mean for his cancer. Good news that he is home and eating. Maybe now he will begin the healing process and start getting better. And, i would think just being home, and with the furry ones there has to help. |
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ScarlettP
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Post by ScarlettP on Nov 25, 2009 5:49:42 GMT -5
Hurray! Having your loved on home and eating is such a good way to spend Thanksgiving.
I had not heard of the +/- HIV types. Guess that's sort of like Herpes. One gives you cold sores and ...well... you know.
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JC
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Post by JC on Nov 28, 2009 15:20:24 GMT -5
What happened to ohwell?
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Post by mikeydokey on Nov 28, 2009 16:48:07 GMT -5
Maybe she didn't like "Y'all".
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Post by LimitedRecourse on Nov 29, 2009 18:49:28 GMT -5
"...and with the furry ones there has to help."
I hope she means the pets...
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Post by ohwell on Dec 10, 2009 18:54:42 GMT -5
I want to thank all of you. Your kindness has given me strength. Things are better. When you are this far down, better is really great. He developed an allergy to the anti viral medication. Are you ready? ? He is now on the same medication used to treat leprosy. He has gained weight. He is eight weeks behind in chemo. His ICD had to be adusted twice in the same day. But, God is good and things are looking up. A wet tongue always helps. Plus the cute wag of the tail. |
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Post by Justin Thyme on Dec 10, 2009 19:10:30 GMT -5
The weight gain is good news.
There are more people praying for you and him than you might imagine. Yes, God is good all the time and all the time God is good. I'm glad to see you back.
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Post by Warkitty on Dec 10, 2009 21:52:31 GMT -5
I'm so glad he's putting on weight. Thank you for the update, I was thinking about you and wondering how things were going. You and your husband remain in my thoughts.
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ScarlettP
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Post by ScarlettP on Dec 11, 2009 7:58:14 GMT -5
Hurray! I do hope this means he has turned a corner and is headed toward being himself again. And nice to have you back. *Big Hugs*
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Post by ohwell on Dec 12, 2009 15:33:34 GMT -5
Thanks, friends. You have no idea of how much your kindness and understanding have meant to me.
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Post by ohwell on Dec 20, 2009 16:24:46 GMT -5
His dog just peed on the bed, and I'm the one that had to change the bed. He is the one that has to wash the sheets. Now, I'd like to see him fold the fitted sheet, to my satisfaction.
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Post by mikeydokey on Dec 20, 2009 20:53:43 GMT -5
I hate trying to fold fitted sheets. I fold them pretty good.
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Post by ohwell on Dec 21, 2009 19:11:50 GMT -5
It takes talent. That and mashing potatoes. Never could conquer that quest.
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Post by ohwell on Dec 26, 2009 16:10:30 GMT -5
OK, he can fold fitted sheets. But he can't fold the pillow cases. And, he can't fold towels properly. But he kisses good. And the hugs are wonderful. I just hate to cry on his shoulder.
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